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Nemours/Alfred I duPont Hospital for Children receives Center of Excellence Award

On April 18, 2016, the Sturge-Weber Foundation released an announcement naming Nemours/Alfred I duPont Hospital for Children their newest Center of Excellence for children living with Sturge-Weber Syndrome (SWS) and other vascular diseases.

SWS is one of the most common neurocutaneous syndromes. Neurocutaneous syndrome refers to a broad group of lifelong, congenital neurologic (brain, spine, and peripheral nerve) disorders. Other common neurocutaneous syndromes include neurofibromatosis and tuberous sclerosis. Although patients have the disease at birth, the effects of the disease may not appear until later in life. Tumors in the brain, spinal cord, organs, bones and/or skin mark neurocutaneous syndromes, which progress differently through a child’s lifetime. Common symptoms of neurocutaneous syndromes include red birthmarks (port-wine birthmarks), benign growths on the iris, hearing loss, scoliosis, seizures, and headaches.

Nemours/Alfred I duPont Children’s hospital received the Center of Excellence award for their innovative, state-of-the-art clinical care and research. The researchers and clinicians at Nemours/Alfred I duPont provide excellent care to patients, while producing exceptional research to improve the treatment and quality of life for patients with SWS. SWS therapy requires integrative care between specialists in neurology, neurosurgery, ophthalmology, genetics, and dermatology, a complex task Nemours/Alfred I duPont carries out seamlessly.

The Sturge-Weber foundation exists to provide information, education, and support to adults and families of children with SWS. The Foundation also supports patients with Klippel-Trenaunay, a vascular disorder characterized by a similar port-wine birthmark as SWS. By establishing the Center of Excellence award, the Foundation seeks to enhance the collaboration between hospitals providing top-rate care to those suffering from SWS. These collaborations will help increase the pace of research discovery and ultimately improve care for those who will benefit from it the most.

Nemours, an internationally recognized children’s health system, owns and operates the Alfred I duPont Hospital for Children in Wilmington, Delaware. The system also has excellent hospitals in Florida, Pennsylvania, New Jersey, and Maryland.

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